The Endometriosis Impact Questionnaire (EIQ): A tool to measure the long-term impact of endometriosis on different aspects of women's lives

Moradi, M. and Parker, M. and Sneddon, A. and Lopez, V. and Ellwood, D. (2019) The Endometriosis Impact Questionnaire (EIQ): A tool to measure the long-term impact of endometriosis on different aspects of women's lives. BMC Women's Health, 19 (1).

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Abstract

Background: Endometriosis is a chronic disease impacting on many aspects of a woman's life. Because of the chronic and recurring nature, many of the impacts of endometriosis could be missed using existing questionnaires which focus on recent events. Therefore, a questionnaire with a long-term perspective is necessary. This study aimed to develop and evaluate a questionnaire to measure the long-term impact of endometriosis on different aspects of women's lives. Methods: Through a methodological design, phase 1 was qualitative and phase 2 was a cross-sectional study. The original 100 EIQ items were developed based on results from an earlier qualitative study and literature review. Through a process of assessing face and content validity this was reduced to 66 items. The psychometric properties of the final 63 item EIQ were evaluated through a web-based survey with data from 423 responders with a self-reported surgically-diagnosed endometriosis. Results: Participants were aged 16-58 years. Exploratory factor analysis of a 66-item EIQ was established with 423 responders. The final 63-item EIQ contained six dimensions including: 33-item physical-psychosocial; 3-item fertility; 7-item sexual; 11-item employment; 6-item educational; and 3-item lifestyle. Cronbach's alpha of 0.99 for the whole 63-item EIQ, and 0.84 to 0.98 for the dimensions suggests a very good reliability. High positive correlations between the EIQ and the EHP-5 (altered recall period) indicated good evidence of concurrent validity. High intra-class correlations indicated very good test-retest reliability. Conclusions: The EIQ, as a disease-specific questionnaire, could be used to provide a better understanding of the impact of endometriosis on different aspects of life, to better meet the needs of women. We recommend additional studies to establish validity evidence for the EIQ, including studies in other countries and languages. © 2019 The Author(s).

Item Type: Article
Additional Information: Export Date: 16 February 2020 CODEN: BWHMA Correspondence Address: Moradi, M.; Nursing and Midwifery Care Research Center, Mashhad University of Medical SciencesIran; email: moradim@mums.ac.ir
Uncontrolled Keywords: Endometriosis psychometrics quality of life questionnaire reliability validation study adolescent adult Article cross-sectional study educational status employment Endometriosis Impact Questionnaire female fertility health survey human major clinical study psychometry social psychology women's health middle aged psychology reproducibility self report severity of illness index young adult Cross-Sectional Studies Humans Reproducibility of Results Surveys and Questionnaires
Subjects: WQ Obstetrics
Divisions: Mashhad University of Medical Sciences
Depositing User: mr lib1 lib1
Date Deposited: 21 Jun 2020 09:24
Last Modified: 21 Jun 2020 09:24
URI: http://eprints.mums.ac.ir/id/eprint/18541

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